One of the first steps is to get your child on Medicaid through what is called the Katie Beckett waiver. Look up Katie Beckett and you will see the story of the lady who this waiver was named for. In my family's case, this waiver allows us to cover expenses for my daughter without worrying what the financial impact will be to our family's budget. This is the purpose of the waiver. It does not depend on the family's income, but rather, depends on the child's disability.
Here is a link to the application to fill out to receive Katie Beckett:
https://drive.google.com/file/d/0B_K3_DtSrLrcc183Uk4wODE4X2s/view?usp=sharing
About 2 years ago (2010), the Idaho Legislature voted to start a cost-sharing program with this waiver. I paid for a few month's of "bills" and then noticed on the third or fourth "bill" that on the bottom it said something like, "Mark this box if you want to opt out of this cost sharing program" So I marked the box and called the phone number on the "bill" to make sure that this would not impact my daughter's Medicaid coverage. It hasn't from anything I have seen. Also, I was told that it would not impact her coverage. Also, when I did opt in the cost sharing program, I paid through my husband's flex health savings account through his workplace. Since this was for medical expenses, I figured that it should be able to cover the cost-sharing charges.
The Idaho Careline, call 2-1-1, is a great place to start to see what the steps are to get your child on Medicaid through the Katie Beckett waiver. For us, we see a nurse every two or three years for a medical assessment. The Medicaid nurse last year was Jacquelyn Luckow, 239-6272.
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